I forgot to take my meds last night. With a recent raise in my daily dose, missing
a day appears to have far more severe consequences than when I have been on a
consistent dose for a while.
As some of you may know I was diagnosed with Manic
Depression (Bipolar Disorder) about 5 years ago. It has been a continuous struggle throughout
my life with only the fairly recent explanation of my diagnosis. I have found that my normal psychiatrist that
manages my medication is just too unavailable to me when I am going through a
bought of depression or mania. So I had
decided a few weeks back to seek the help of a new doctor who agreed to take me
off work for a few weeks while we start working on cognitive behavioral therapy
(which I am finding about as useful as a mosquito). She upped the dose on both my current
psychological medications and that’s been about the extent of her work at this
point. After already spending over $600
on visits with her I would expect some sort of actual therapy, not just
medication management which is one of the reasons I left my other doctors care.
Needless to say I am considering returning to the old psychiatrist and seeking
the help also, from a therapist whom I had great success with a few years
back. While I (deep down) know that my
current doctors method is just not right for me and that is in no way either of
our faults, I feel flakey and overly dramatic leaving her practice to return to
where I once was.
Today has reminded me of many things.
Mainly of the wonderful depth that this disease carries with
it. I sat in my room sobbing uncontrollably
as I watched a documentary by Stephen Fry called The Secret Life of a Manic
Depressive (or something like that. I
highly recommend it). I found a clip
where he was talking about how several people with this disorder were asked if
they had a choice to keep manic depression and all that comes with it or get
rid of it. Only 2 people out of I don’t remember
how many hundreds said they would take the cure. I found this wonderfully liberating as I am among
those that would keep it. I’d like to
explain why in my own words as best as I can.
With Bipolar disorder comes some absolutely pure
beauty. Inspirations in all forms of art
are constantly attributed to artists who have suffered from this awful and
intense diagnosis. I have felt this
elation that can come from the manic side of the bipolar spectrum which comes
from being able to create and see things so grandiosely. Carrie Fischer once said that being manic was
better than any drug she could have ever taken.
This rang so true with me that it
took my breath away.
But there is this other side to the mania, and that, as you
are aware of I am sure, is the depression.
It’s a dark place where all those feelings you once had are
far away. Seeing past the moment you are
in is impossible, and I don’t use that term lightly here.
Stephen Fry described it like the weather of the mind. It’s one of the best analogies I’ve heard and
I am grateful to have found it today. He
spoke about how when it rains you can’t stop the rain by choosing to do so, you
have to ride it out. Yes there is sun
out there somewhere, but right now its ice cold rain, sleet, the wind is
unbearable! Imagine now that there is no
end to this. Or rather that you do not
have it in your capacity to comprehend that there is an end to this. No matter how many times you are told, that
sun will be here soon; you just can’t get your head there.
That is depression.
You just CAN’T get your head there.
So here is a bit of wine with the cheese I have presented:
I cannot stand one more person telling me that everything is
going to be okay. My friends and family
are some of the best the universe has to offer.
For this I am truly grateful. And
it is to them that this next message is directed. To them and to anyone who doesn’t have this
or any other mental disorder they do not completely and utterly understand from
their own personal experience.
Telling me that I just need to try harder or keep trying –
makes me feel like all that I have done means nothing because you cannot see
that every moment is my best moment because it’s the only way I can breathe.
Telling me you are there for me and I am never alone – I know
this, it doesn’t really make me feel better and I am sorry to say that. Please believe me, I am sorry.
Telling me I just need to get out and do more (hang out with
more people, be more outdoorsy) – Tells me I am not living up to your standards
and I am a let-down for not enjoying what you enjoy.
Asking me what is causing this, especially when I have
stated that I don’t have a reason – I really don’t have a reason. I don’t have low self-esteem, I don’t dwell
on terrible things. This is a medical
condition that sometimes makes crying unstoppable and facing life
unbearable. I know it most likely doesn’t
make sense to you that I’m sad for no reason, but if that’s what I say is going
on, it’s not a lie. So don’t keep
asking, it makes me think you don’t trust me.
Okay, time for wine is over.
Back to that oh so delicious cheese.
You may be wondering “well, how do I help you if those are
things I shouldn’t say? I don’t mean to
make her feel worse when I say things like that, I just don’t know how to help.”
Fear not: I have provided below a little advice as to what
to say/do to help. At least this is how
I feel about things. (please remember ever case is different, and this is just
advise on my case and advise I have heard others like myself say they wish
other people knew)
Step one: Do some research.
If you really want to help someone, try to understand what it is like,
and what causes this to happen.
Step two: Be an advocate for active research and positive
treatment.
Step three: Spread awareness that this is a serious health
issue, and that the stigma around mental illness is nothing but harmful.
Step four: when encountering someone in a depression, it is
totally okay to ask if they need anything or want to talk about it. If they say anything other than no (and that
includes “I don’t know what to talk about”) the answer is almost certainly a
yes.
Step five: ask, how can I help you right now?
Step six: If that person doesn’t have an answer for you, you
can always say the following. “ I love
you and I’m going to sit here with you while you cry. If you want to talk, then talk. If you don’t, that is okay too.” Yes this is similar to saying you are not
alone. But, proving it is different than
saying it.
Step seven: Have no expectations and no agenda. Don’t try to cheer me up. I know misery is uncomfortable, especially
for those outside looking in. But think
of it this way. A person is not there
condition and making a person feel guilty for having a condition because you
are uncomfortable is really your fault, not theirs. So just don’t worry about it. Be calm.
Hold their hand through the storm and when you both come out on the
other side, it would have made more difference than you may ever be aware of.
Step eight: Be honest.
If you don’t know what to say, I would far rather you told me that, then
sat there uncomfortable and feeling bad.
I don’t want you to feel bad and I don’t expect you to have the magic
words. This goes back to asking if there
is anything you can do or if the person wants to talk. Don’t ask this if you are just being nice and
don’t really want to be there.
Believe it or not, I understand that this disorder is not
just uncomfortable and exhausting for the person with it. If you need a break from me, just tell me
that. Explain how you are feeling
because your fears and feelings are equally as valid as mine. COMMUNICATE
COMMUNICATE COMMUNICATE.
Okay, I think you
get the gist of what I am trying to convey here. I would appreciate any comments or questions you
may have on any of this. Whether you
have a mental health condition or not, you are valid. Please speak up if you are able. And if you’re not, that’s okay. I love you and I will sit here with you
through this storm, whether you think you want me there or not.
Thanks for reading all.
Much love and Blessed Be.